In
recent years, hundreds
of mental health chat rooms and bulletin board support groups have
emerged (Cummings, Sproull, & Kiesler, 2002; Page, 2003). The growth of
mental health online support groups has been characterized as an
expansion of traditional mental health service (Perron, 2002).
Potentially, a greater range of people with mental health concerns can
be helped compared to the range of people helped when relying on
strictly traditional face-to-face counseling methods. Researchers have
sought to identify advantages and disadvantages of online self-help
groups and the extent that the group therapeutic processes that operate
in face-to-face group counseling can operate in online self-help groups
(Finn, 1999; Gary & Remolino, 2000; Miller & Gergen, 1998).
Advantages for using online self-help groups include convenience,
anonymity, inexpensiveness, and accessibility to people with common
interests globally (Gary, 2001). The anonymity of online groups is
especially attractive for individuals who have previously resisted peer
support because of personal stigma or cultural reasons (Gary, 2001; Gary
& Remolino, 2000). Disadvantages sited include the loss of nonverbal
cues (Childress, 1998; DeGuzman & Ross, 1999; Galinsky, Schopler, &
Abell, 1997; Salem, Bogat, & Reid, 1997), transience of member
participation, and difficulty providing individual assistance to
participants in crisis (Gary & Remolino, 2000). Additionally, the
anonymity of the forum limits the ability to provide interpersonal
feedback and hold members accountable for their behaviors (Miller &
Gergen, 1998). Anonymity also makes it possible for users to perpetrate
hoaxes of identity (Gary & Remolino, 2000).
Although anonymity has potential disadvantages (e.g., hoaxes, lack of
accountability), anonymity has also been postulated as a primary
mechanism of change for online groups (McKenna and Bargh, 1998; Suler,
2002). In a study of socially marginalized groups, McKenna and Bargh
concluded that the presence of anonymity freed participants to explore
their “true” selves without risking alienation from family and friends.
The finding supported Suler’s (2002) online disinhibition effect,
where anonymity increases exploration of perceived shameful secrets
because the threats of undesirable repercussions in regular life are
removed. To date, empirical investigations have not explained how the
disadvantages are offset by the advantages of anonymity.
Other studies provide evidence that online self-help groups evince
therapeutic processes that operate in face-to-face group counseling
(Finn, 1999; Salem et al., 1997). One study examined benefits for online
self-help group users coping with depression (Salem et al.). Using a
random sampling of over 500 participants and 1,800 postings, Salem et
al. identified two helping processes described as essential elements to
therapeutic change in professional group therapy (Yalom, 1995): helping
others (i.e., altruism) and advice or information exchanged (i.e.,
imparting information). In another study about online users coping with
disabilities, Finn (1999) evaluated data with a content analysis and
found evidence that five of Yalom’s 11 elements of therapeutic operated
in online support groups: catharsis, universality, group cohesion, the
providing of information (i.e., imparting of information), and of taking
on the “helper role” (i.e., altruism). However, Finn also acknowledged a
study limitation that the therapeutic conditions identified were based
on “raters, not by the group members themselves” (p. 228) and
recommended that “research that obtains information directly from group
participants about their experiences in online groups is much needed”
(p. 229).
The purpose of the current investigation was to one, seek clarification
for how advantages and disadvantages impacted member use of online
support groups and two, to identify which, if any advantages listed by
users, suggested evidence for Yalom’s 11 group therapeutic factors. We
believed that soliciting judgments directly from the people using the
medium, as Finn recommended (1999), was a logical next step to help
advance this research agenda. A qualitative approach of analysis best
served the integrity of respondent judgments about online self-help
groups.
Method
Participants & Procedure
After performing a search on Yahoo for self-help
chat rooms/bulletin boards
related to mental health concerns
(e.g., depression, substance abuse), we asked permission to advertise
our research project.
Volunteers were solicited from the 130 self-help
chat rooms/bulletin boards
that permitted our research. Volunteers were linked to our webpage
containing the consent form and survey. The consent form stated our
purpose of
learning their reactions and experiences with self-help chat
rooms/bulletin boards.
The survey required approximately 10-15 minutes and could be submitted
electronically when completed. Although the anonymous submission of
surveys prevented a calculation of response rate, Internet Cookies were
used to detect duplicate responses originating from a particular
computer and helped preserve validity of the responses received. We
collected data over four months in the spring and summer, 2003. In all,
157 members volunteered for participation.
The average respondent was 30.1 years old (Range:
13-74; S.D. = 14.9),
female (78%), Caucasian (91%), unmarried (66%), had attended some
college (41%), and earned less than $20,000 annually (44%).
The problems for which respondents sought online self-help
groups were summarized in Table 1.
Table 1
Nominal Self-Descriptive Characteristics of Respondents
|
Descriptor
|
n |
|
Presenting
Problems
|
|
|
Depression |
31 |
|
Eating Disorders |
27 |
|
Medical Complications |
23 |
|
Relationship Problems |
18 |
|
Sexual Victimization (Assault, Rape, Abuse) |
15 |
|
Panic/Anxiety |
14 |
|
Self-Mutilation |
13 |
|
Bipolar Disorder |
11 |
|
Friendship/Loneliness |
10 |
|
Parental |
9 |
|
Other Anxiety (OCD, Social Anxiety) |
9 |
|
Other (Gender Identity, Self-Esteem, Anger) |
7 |
|
Addiction |
6 |
|
Post Traumatic Stress Disorder
Suicide and Self-Harm |
5
4 |
|
Personality Disorder |
3 |
|
Sex Concerns |
2 |
|
Total |
208 |
Of the 148 participants who typed a response for this question, 13 did
not identify a problem and 4 did not provide a clear problem (e.g.,
“abuse”), leaving 131 respondent comments for analysis. For those 131
respondents, 208 problems were categorized. Although only about a third,
32% (n = 42) reported co-occurring concerns (e.g., eating
disorder, relationship problems), most (i.e., 42 of 49, 86%) reported
co-occurring concerns when depression and anxiety was the accompanying
problem. The most frequent problems for which users sought support were
depression, eating (i.e., bulimia, anorexia, or concerns about those
problems), medical (e.g., aspartame poisoning, Paxil withdrawal),
relationships (e.g., domestic violence, divorce, adoption), sexual
victimization, and self-mutilation.
Data Analysis
We used a basic interpretive qualitative approach to analyze participant
perceptions
about the
advantages and disadvantages for using
self-help Chat Room/Bulletin Boards.
Categories were developed using the constant comparative method (Ary,
Jacobs, Razavieh, & Sorensen, 2006).
In the first phase, provisional coding of brief, concrete, recurring
participant responses were selected (e.g., anonymity, cost). Coding in
the first phase was conducted by two individuals, one of whom was the
first author and the other an independent rater with a masters and
specialists degree in counseling education.
When a respondent identified multiple advantages/disadvantages, each one
was categorized separately (e.g., vent, emotional support) unless the
reasons or problems stated was alike (e.g., friendship and connection).
Tentative categories were developed for clusters of related units of
meaning
(e.g., Universality). In the second coding phase, the second author
independently rated responses and then reviewed codes developed in the
first phase. For the first author only, categorization
of the advantages and disadvantages was influenced by the online outcome
literature (e.g., McKenna & Bargh, 1998; Suler, 2002) and categorization
of group therapeutic factors was influenced by the 11 therapeutic
factors set forth in Yalom (1995). The second author was influenced by
background in group dynamics (Yalom, 1995). To improve dependability of
the analysis, we
estimated
inter-rater agreement of categorization between the first and second
author by randomly selecting 25% of the respondents for comparison.
Inter-rater agreement for identically named categories for advantages
was 31%, while similar units of meaning (e.g., Variety vs. Diversity;
Disagreement vs. Conflict), had an inter-rater agreement of 83%.
Discrepancies were resolved by consensus. Finally, we
tallied each category.
Instruments
Sociodemographic questionnaire
(15-Items):
The sociodemographic questionnaire consisted of nine fixed alternative
questions (i.e., gender, annual income, ethnicity, education, marital
status, time spent on bulletin boards, time spent in chat rooms, general
time on the net, and counseling service history),
and one fill-in-the-blank item for age. There were two checklist items,
Reasons for Participating in Chat Room/Bulletin Boards (e.g., cost,
convenience) and Previous Counseling History (e.g., individual, group
counseling).
Results
The first research question addressing the advantages and disadvantages
for using online self-help groups from the user’s perspective are
summarized in Tables 2 and 3, respectively. Of the 157 respondents, 134
described either advantages or disadvantages. Of those, two responses
were ambiguous (e.g., “you don’t see the people face to face”), one was
for a different purpose altogether (e.g., “used for sexual
gratification”) and another only discussed the disadvantages of their
face-to-face counselor. Those four respondents were excluded from the
analysis, leaving 130 respondents (i.e., 83%) for categorization. In
total, 349 responses were categorized, 261 as advantages (i.e., 75%) and
88 as disadvantages (i.e., 25%). Of the
261 responses categorized as advantages, 127 fit within Yalom’s
framework of group therapeutic factors and 140 responses were
categorized as advantages unique to groups online (see Table 2).
Table
2
Categories of Self-Reported Advantages for Online Client Support Groups
|
Categories of
Online Respondent Experiences
|
n |
|
Total Advantages Unique to Online Counseling |
140 |
|
Anonymity |
50 |
|
Accessibility |
37 |
|
Disinhibition |
18 |
|
Diversity |
17 |
|
Cost/Affordability |
11 |
|
Autonomy |
7 |
|
Total Advantages in Common with Yalom’s Group Therapeutic Factors
|
121 |
|
Universality
|
60 |
|
Imparting Information/Advise |
32 |
|
Altruism |
16 |
|
Catharsis |
9 |
|
Instillation of Hope |
4 |
|
Total Categories
Coded |
261 |
Six main categories of advantages were categorized for
online self-help: Anonymity, Accessibility (i.e., convenience or
expedience), Disinhibition, Diversity (i.e., members around the world),
Cost/Affordability (i.e., free service), and sense of Autonomy for when
and how much to respond. Of these six
advantages, Anonymity and Acceptability accounted for 62% of the
advantages reported by participants.
Anonymity was multifaceted. It provided safety for online users:
The message boards let me really talk about what's going on without
fearing running into someone on the street who ‘knows my secret.’
Anonymity was associated with remarks indicating a sense of
invisibility:
You don't have to talk to someone face to face which is
easier at first.
People can not see what you look like and [I] feel a lot more
comfortable behind anonymity.
Anonymity was also linked to accounts of Disinhibition, as in “[it
allows] for easier sharing of feelings”; and “you can discuss anything
you feel is on your mind”.
In contrast to Anonymity, comments related to accessibility were
straightforward and were typified by statements such as “[online support
was] available 24/7” and “[there was] support of all kinds, no matter
where you live.”
Autonomy referred to sense of control or ability to vary
level of participation without suffering dire consequences for not
participating:
[You can] pick and choose which threads to read and
respond, if anyone should break my trust, I don't have to listen to
them.
No strings attached - you can sign off the list and forget
about it.
Limitations for Online Group Self-Help
Eight disadvantages unique to the online method of
interaction were identified (see Table 3).
Table 3
Categories of
Self-Reported Limitations for Online Group Self-Help
|
Categories of
Online Disadvantages
|
n |
|
Identity
Apprehension
|
17 |
|
Impersonal Contact |
16 |
|
Absence of Therapy |
14 |
|
Poor Guidance
|
12 |
|
Maleficence
|
10 |
|
Problem of Pragmatics |
9 |
|
Over-Reliance |
6 |
|
Loss of Nonverbal Communication Cues |
4 |
|
Total |
88 |
The most frequent category was Identity Apprehension (i.e., the
discomfort aroused when unsure whether the other users are who they say
they are) and was related to another category, Maleficence (i.e.,
sarcastic, mean, harassing responses). One respondent summed up the
problem of Identity Apprehension well:
If the board is public you have no idea who is reading your most
personal information, could be a perpetrator or someone into rape
fantasy, could be a ‘perp’ [perpetrator] posing as a survivor in order
to find more victims, could also be a person posing as a therapist or
other health professional; Also it’s very hard to trust people to know
if they are telling you the truth or not.
The related problem, Maleficence, was succinctly explained by another
respondent as an “Easy place to make sarcastic remarks without much
possibility of repercussions.”
Impersonal Contact (i.e., distance separating those
communicating; lack of eye contact, hugs, etc.) was the second most
frequently reported disadvantage. As one participant said, “you can only
say or share so much to someone who you have never seen face to face or
have spoken to directly.” Absence of Therapy and Poor Guidance (i.e.,
misguided, misinformed, advice) were the next most frequent
disadvantages. The Absence of Therapy was gleaned from comments such as,
“Some people may think it is a substitute for therapy when it isn't,
sometimes all you get is compassion, (they feel sorry for you) not real
help.” Poor Guidance was described as
misguided (“You have people who don't know what they're talking about
giving advice.”), confused (“You can find the ramblings of a drugged up
horse here rather than a clear answer.”) and rejecting (“you either fit
in with the majority or you do not. If you do not, like any community,
you are shunned...). Surprisingly, Loss of Nonverbal Communication Cues
(e.g., “You lack the whole sensory layer of face-to-face social
interaction”) was infrequently reported. Only four statements were made
about the deficiency of loss of interpersonal cues (i.e., 1% of all
responses categorized and 5% of the disadvantages categorized). Two less
frequently occurring categories were Over-Reliance on the support group
and Problems of Pragmatics in using the online medium (i.e., “it takes a
great deal of time and research to find a good [site], where the people
are truly interested in dealing with the subject the group is designed
to deal with” [sic].
For our second research question, identifying the presence of Yalom’s 11
group therapeutic factors, we found evidence for five factors:
Universality, Imparting of Information or Advice, Altruism, Catharsis,
and Instillation of Hope. The most frequent category, Universality,
accounted for 50% of the responses in this category and was reflected by
the following responses:
Having others who understand and experience this is worth
all the money in the world.
It can be relieving to meet others with common issues, and
you can find out you are NOT ALONE with
your problem.
These statements closely resembled Yalom’s (1995, p. 6) description of
universality (i.e., “We’re all in the same boat”) as well as his account
of its therapeutic value (i.e., “the disconfirmation of a patient’s
feelings of uniqueness is a powerful source of relief”). Altruism, or
receiving psychological benefit through the act of giving (Yalom, 1995),
was also described by respondents, as follows:
I am able to reach out to those who are seeking a
friendly ear to listen and be nderstanding of their situation. It is
simply gratifying to pass on some of the coping tools I have learned and
see some folks improving their lives because of contact through the web.
An exemplar of Instillation of Hope was described by one participant:
“Many different people [were] at many different stages of healing. This
was helpful to me because I could see that people do heal from rape and
abuse.” The other three group therapeutic factors, Imparting of
Information/Advice, Catharsis/Ventilation of emotions, and Acceptance
were more straightforward and were characterized by responses like,
“They [online support group members] are a great source of information,
by getting me in touch with people who have already been there and
hearing what they've learned from trial and error,” and “a chance to
vent . . . .”
Partial support for the therapeutic factor, cohesiveness, was gleaned
from responses expressing the feeling of support and nonjudgmental
acceptance. However, because the responses did not also include
descriptions about a feeling of belongingness, or “we-ness,” integral to
Yalom’s definition of cohesiveness, we interpreted this as not fully
representing the cohesiveness construct.
Discussion
The primary purpose of the current study was to clarify how advantages
and disadvantages impacted member use of online support groups. Results
revealed that of about 350 participant responses categorized, far more
responses (i.e., 75%) related to advantages and only a quarter of
respondent comments related to disadvantages. Three frequently reported
advantages, Universality, Anonymity, and Accessibility combined such
that users were able to make anonymous contact with others with similar
problems (i.e., universality) that might not otherwise be accessible to
them (Finn, 1999; Sparks, 1992). Some respondents described experiencing
greater comfort self-disclosing online compared to self-disclosing
face-to-face and were able to self-disclose problems in less time
compared to doing so in person. The role of anonymity for the online
user in this study was consistent with Suler (2002), who suggested that
anonymity conferred a sense of protection to the user freeing them from
potentially stifling face-to-face interpersonal cues, such as a look of
incredulity, boredom, or disapproval amid a difficult self-disclosure.
Five of the reported advantages were consistent with the helping
processes described as the essential factors to therapeutic change in
professional group therapy (Yalom, 1995): Universality, Catharsis,
Instillation of Hope, Imparting Information and Altruism. Four of the
five factors, Universality (Finn, 1999), Catharsis (Perron, 2002), and
in different terms, Imparting Information and Altruism (Salem et al.,
1997) have been reported in previous studies, providing credence to the
findings in the present study. Universality was the most frequently
reported of these five factors. Partial evidence was found for a sixth
therapeutic process, Cohesiveness, in the current investigation, which
is consistent with some previous reports (Finn; Gary & Remolino, 2000).
The number of disadvantages
reported was a fraction of the advantages reported. Still, the
respondents indeed highlighted a conflict induced by anonymity of the
online nature of the interactions. On the one hand anonymity rendered
self-disclosure psychologically safe, but on the other hand lacked the
warmth of face-to-face contact (i.e., Impersonal Contact) and made it
easier for people inclined to deceive others to perpetuate hoaxes (i.e.,
Maleficence & Identity Apprehension). As an example of the latter
problem, one respondent in this study claimed that he/she used the
service for “stimulation without significant guilt.” In spite of the
disadvantages for the anonymity, one user summarized the conflict well:
“even though these disadvantages are very serious, I feel that the
advantages of a public board outweigh the disadvantages.”
Two surprising results also emerged from the data. Some
members experienced a conflict related to participation of professional
counselors in their forums. Some respondents desired professional advice
and guidance; others only wanted to receive advice and guidance from
people who had “been there.” The lack of professional guidance, or
“hosting,” may have led to the development of cliques, misguided and
misinformed advice-giving (i.e., Poor Guidance), and the allowance for
pity rather than structured challenges (i.e., Absence of Therapy). The
other surprising finding related to the loss of nonverbal cues. Only
four statements out of 349 mentioned a problem of too few nonverbal
cues. This finding is at odds with literature suggesting that loss of
nonverbal cues is a significant shortcoming (Childress, 1998; DeGuzman &
Ross, 1999; Galinsky et al., 1997; Gary & Remolino, 2000). Our findings
may have differed from other studies partly because advantages and
disadvantages were judged by users rather than researchers.
Alternatively, our findings may have been due to lack of
representativeness of our sample. Our data collection method, which
relied on self-selection, may have contributed to the predominantly
young, Caucasian Female sample. Further, we do not know how many online
support group users disregarded our advertisement to participate,
further restricting our findings to a unique subgroup of users and
limiting the generalizability of these findings to other races,
ethnicities, ages, or gender.
Implications
Because one of the disadvantages reported by respondents related to poor
guidance offered by moderators or hosts, one way to promote the
effectiveness of online support groups might be to have professional
counselors assuming this leadership. Having professional counselors as
hosts might also contribute to the level of therapeutic benefit
conferred to participants. As reported in one study, group participants
had greater satisfaction when leaders were perceived as more competent (Maton,
1988). Moderators, knowledgeable about and able to promote group
factors, might deliver more effective online support. However, even
without strong group leaders, it appears that members of online
self-help groups believe that they have received psychotherapeutic
benefits.
Page (2003) suggested that group leaders are uncomfortable with online
formats groups because they equate group work with face-to-face
interaction and as such, might have overlooked the advantages of online
support groups. Professional counselors, however, might also look to the
Internet and online support groups for ethical and productive uses of
online formats (Miller & Gergen, 1998; Page, 2003). The findings of this
study support such a charge for group leaders and other professionals
committed to meeting mental health needs of their community.
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Author's Biography
Todd W. Leibert,
Ph.D., LMHC, Assistant Professor at Oakland University Sondra
Smith-Adcock, Associate Professor, University of Florida and Joe
Munson, Doctoral Student, University of Florida.
Correspondence
concerning this article should be addressed to Todd W. Leibert, Oakland
University, Department of Counseling, 2200 N. Squirrel Rd., Pawley Hall,
Office #: 440K,
Rochester, MI
48309-9929, Phone: (248) 370-2626, E-mail: leibert@oakland.edu